Imagine anger residing at one end of your home and autonomy at the other, with Huntington’s disease (HD) sitting right in the middle. Before my wife, Jill, found out eight years ago that she is gene-positive with HD, she could usually tell when she was becoming irritated. She…
Discussion
When people talk about joy, they often make it sound polished. It might be presented as big smiles, perfect vacations, exciting announcements, or lives that seem untouched by hardship. It’s often packaged as something bright, effortless, and easy to recognize. But that’s not the kind of joy I know. My…
Discussion
A speech index score built from smartphone voice recordings tracked the severity of Huntington’s disease and matched closely with standard clinical assessments and brain scan measurements, according to a new study from China. The index score, derived from measures of loudness variation, mispronunciation rate, pitch strength, and speech timing,…
Discussion
My wife, Jill, who is gene-positive with Huntington’s disease, and I don’t usually associate Legos with cancer. Those are two worlds that feel like they belong on completely different shelves in life. Yet American households collectively owe at least $220 billion in medical debt, much of it tied…
Becoming educated and informed about Huntington’s disease is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your Huntington’s disease journey.
There is no cure for Huntington’s disease yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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